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Wednesday, September 29, 2010

A Meme for Kids with T1D

The meme got me thinking. How about a meme for the kids, who're living with T1D?

Want to play along? Come on! It'll be fun!

As with the first meme, let's tag each other. At the end of this post, you'll see the name of the friend I've tagged.

When you're tagged, have your CWD answer the below questions that I posed to Jack. Don't influence your child's answers, and when posting, don't edit them either. Let's keep it real!

If your child is not able to answer all questions, or doesn't wish to answer all questions, don't worry. If your child is young and not very articulate yet, again, don't worry. Just have fun.

Some kids' answers will be cute. Some will be silly. Some will be serious. Some will be surprising. Let's roll with whatever comes "out of the mouths of babes."

If you have more than one child with diabetes, feel free to include answers from one or all. It's up to you.

This meme should give us an opportunity to get better aquainted with the kiddos about whom we blog and read.

Jack was in a chatty mood, so I fired away. Here's what he had to say...

What is your name?

How old are you?

When were you diagnosed with diabetes?
When I was four years old.

Do you remember what happened when you were diagnosed or how you felt?
The day before I was diagnosed, we went to a park, and I was really thirsty. I drank a lot of water, but I didn’t know I had diabetes. So I went to the doctor, and the doctor said I had diabetes.

Do finger pokes or shots [or site insertions/infusion set changes] hurt?
No, not really. Well, sometimes, the big shots hurt, the ones with more insulin, like the Lantus shots.

What is a high number?

What is a low number?

What does low blood sugar feel like?
It feels like I’m going to fall on the ground, if I don’t test and drink some juice or eat something. It feels like I’m going to plop on the floor, and I think that if I don’t get my blood sugar level up, then I’m going to go to sleep or pass out.

What’s your favorite way to treat a low?
Fruit snacks.

How do you feel when your blood sugar level is high?
Most of the time, I don’t feel it. I don’t know that I’m high, until I test my blood sugar level. But, sometimes, I get headaches.

What’s the best thing about having diabetes?
At Disneyland and Sea World, I got a fast pass [guest assistance card], so I didn’t have to wait in long lines for the rides.

Also, I met some other kids with diabetes, and they became my friends.

What’s the worst thing about having diabetes?
Some times, I worry that if I went too high, like in the 600s, and insulin didn’t work to bring down my blood sugar, then I’d have to go to the hospital.

Do you worry much about diabetes?
No, not really. I’m fine. It doesn’t really matter to me.

If one of your friends were diagnosed with diabetes, what would you say to that friend?
Don’t worry. It’s not bad to have diabetes. It can be fun at times. Like at Disneyland, you get this fast pass thing and you don't have to wait to go on rides. I don’t know what else I’d say. Maybe I’d try to cheer them up, if they were sad, or I'd show them my poker and test strips and meter and stuff, so they wouldn’t feel alone.

What’s your favorite food?
Just one? I don’t have a favorite. I really like pizza, ice cream and cotton candy.

What’s your favorite snack?
Cookies that you make. Oatmeal cookies are my favorite. Can I have a cookie right now?

What’s your favorite low-carb food?
Ham, not in a sandwich. Just ham. But I like turkey, too. And eggs, cheese and peanuts.

Do you know what a blog is?
A website? You write about stuff on a blog, like what you’re doing right now. You’re asking me questions for your blog, aren’t you?

Do you know that I blog about diabetes?

Do you care?

Why do you think I blog about diabetes?
To try to find a cure?

What’s your biggest wish?
That Legoland and Sea World and Disneyland were closer to our house, and that the tickets were free, so we could go all the time.

I wish I didn’t have diabetes, unless we were on vacation, so that I could still have a fast pass for all the rides.

[My friend] Leo had cancer last year. He was really sick, but now he’s all better. He's cured. I wish the scientists could figure out a cure for diabetes. How come scientists and doctors know how to cure cancer, but not diabetes?

Who’s your best friend?
I don’t have just one. I have lots of best friends. Danny, Griffen, Austin, Tyler and Max B.

What do you like about him/her/them?
They’re really fun to play with.

What’s your favorite thing to do?
Again with the favorite! Mom, I don’t have just one favorite! Baseball, tennis, and basketball. I like to play computer games, Wii games and Nintendo DSi games. I like to ride my bike and go swimming, too. I like to read. I like to watch TV. I like to play with Alex [our puppy].

Do you have a hero?

No heroes at all?
I don’t look up to Bret Michaels, but he’s pretty cool, because he has diabetes and he’s a rock star.

What do you want to be when you grow up?
I want to be just like my dad.

Who’s your favorite person in the whole wide world?
I don’t know. I don’t have one. [pause] You, because you give me cookies [he said with a smile]. Can I have a cookie right now? [The answer was “no.” Dinner was coming up in a matter of minutes.]

Are you afraid of anything?
Scary movies and scary TV shows. Last night, I watched part of Ghost Trackers on TV, and then afterward, I felt like something was following me. That made me feel afraid. I don’t want to watch that ever again. I think it should be for grown-ups only. Sometimes, when I’m alone in a room, I think a wolf or a coyote is going to jump through the window and attack me.

Fill in the blank. Jack is___________. There is no right or wrong answer.
Jack isn’t different from other kids, just because he has diabetes.

And now Tracy, tag, you're it! Let's see the Superhero's answers! :)


Reyna said...

WHAT A WONDERFUL IDEA!!! First off, I think his idea of a low and high are interesting numbers - 50s or 500s - huh? Well at least that leaves a lot of ground in between - LOL.

Joe says "d" doesn't really bother him either...Such a great post Heidi. BTW, did he get a cookie for dessert at least?

Meri said...

Awesome! He is such a cutie..and I want a cookie too, no fair!

I remember doing a post like this awhile back...I'm going to have to look it up. :)

Nicole said...

Great idea!! and so cute, I love how stuck he was on that fast pass and the cookies... you have a great little guy!!

Rachael said...

What a sweetie! I loved the raw answers and his love for amusement park fast pass! I think they should get one! Great post!

Anonymous said...

I love this post. As a T1D parent, Jack's dad to be exact, we live with this disease every single day. Yet we never truly know how it affects our children. We never truly know what it feels like to have T1D. We hope that it doesn't effect our children's psyche, but deep down inside we know it does.

Great post!!!!

Pam said...

Such a great post! I can't wait to read more of the kid's perspective.

Tracy (The Crazy Pancreas) said...

Thanks for the tag! I love this and I love Jack's answers!

I will ask The Superhero the questions now. :-)

Kelly said...

He is too funny! How cute! Im tagging myself since Im out of the Diabetes loop!

Laura said...

I love this!! He is precious! His answers made me laugh --- so honest! I want a cookie now too!

Danielle said...

So interesting to hear him describe a low! And The Bean sometimes complains of a headache... I wonder if it's related to high bg!

shannon said...

Thanks for these questions! I loved all his answers, even the ones that made me pause.

I'm gonna see if I can catch the kid in the right mood and ask here these for my blog! :)

Misty said...

So sweet!! I felt like I could hear Jack answering you out loud (and I've never even met him!) Love this idea!