Sugar Bolus

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Tuesday, November 30, 2010

A CGM of Our Own



It's here.

Inside that box.

Jack's CGM.

No, make that: JACK'S CGM!!!!!!!

After months and months of yearning, it's finally here!!!!

It arrived today.

Can you tell we're excited?

Now if only we knew how to use it...

We'll learn in the days to come.

Tonight, we're just enjoying the fact that we finally have a CGM of our own.

Tuesday, November 23, 2010

To Pump or Not To Pump?

Thanks for all of the comments left on my previous post about pumping. I appreciated your thoughts and support.

For the past 24 hours, I have been consumed with thoughts of the pump. To pump or not to pump? To pump now or wait until a later date? 

Gregg and I have talked and talked and talked, and after much thought and discussion, we've decided to wait.

We set aside our endo's opinions. We made the decision for other reasons, and really, we would push for the pump, if the timing felt right. We have a good rapport with our endo, and we're not afraid to speak up.

We're having a rough year with Jack's teacher. The more I began to think about introducing a pump to her, the more I realized that's not a good idea. Gregg agrees. 

Besides, as our endo pointed out, Jack does not mind getting shots. He never complains about shots.

So, we don't need a pump now. We can wait. 

We'll revisit the topic next summer, and we may need to wait until the end of next year, because of our insurance deductible. We'll see.

Gregg and I are both at ease with our decision, and Jack didn't seem disappointed, which was a relief. He wants a pump, but he's okay with waiting. I think he, more than anything, just wanted to know that it's an option for him.

We're going to go ahead and get the CGM. We're all excited about that. :-)


Monday, November 22, 2010

What gives?

I don't get it.

Please, dear D mamas and papas, help me understand.

Today, we visited our endo for our quarterly visit.

For many reasons, I love our endo. I trust his judgment. He's been practicing for 32 years, and he knows his stuff. Though he has all this experience and knowledge, he's not "old school" at all. He's up-to-date and a true technophile. He's a perfectionist. He truly cares. He's wonderful with Jack. He never talks down to us. He listens to our concerns. He responds to my email messages lickety split. I could go on and on, but I'll spare you. Suffice it to say that he's a good match for us.

At today's appointment, I told him that we'd like to consider both a pump and a CGM (continuous glucose monitor). Now, we've had this talk with him before, but because of our insurance situation, we haven't done anything. We have a ridiculously high deductible, so we pay out of pocket for ALL D supplies, medications, doctors' visits, lab work, diagnostic tests, etc. Thus, the only time of year it makes financial sense for us to get a pump and/or CGM is now.

Our endo was all for the CGM. In fact, he submitted the paperwork for us within just a few hours of our appointment (another reason I love him).

But, then he discouraged a pump. "If it ain't broke, don't fix it," he said. That's not the first time I've heard him say that. Every time we've raised the pump topic, he's said that.

What he means is that we've consistently achieved a decent A1C for Jack. Today's came in at 7.2. Woo hoo! :) So, shots are working. We don't necessarily need improvement there.

Though, being the type A perfectionist that I am, I can't help but wonder whether we could improve upon the 7.2 with a pump. 7.0??? 6.8???

He also said that Jack is still on a small amount of insulin. His Lantus dose is 10 units. Doc thinks he should need at least 12 units of Lantus, before considering the pump, to make the conversion to the basal rate nicer.

Now, I've done my research. I know the Animas Ping, for example, can deliver 0.025u of insulin. So what's the big deal if we need to break down 10u of Lantus (and convert it to Humalog) over a 24 hour period???

I don't get it.

I know there are kids, who probably require even less insulin than Jack, who're on pumps. I know there are endos, who actually encourage pumping.

What does your endo encourage? What are your thoughts? What are your child's basal rates, if you don't mind me asking?

I know every child's diabetes is different. I know all docs are different, and I trust our doc's judgment. He's totally into technology, and I know he would push the pump, if he felt it would help us.

If we don't get a pump now, we'll have to wait another year, unless our insurance situation suddenly and miraculously changes. Jack wants a pump. So, now seems like a good time to me...but our beloved doc thinks otherwise.

What gives? Any ideas? Any words of wisdom? What has your endo told you?

Friday, November 19, 2010

Cookies for Kids' Cancer Bake Sale


In August 2009, Max's best friend Leo was diagnosed with an aggressive form of cancer, Burkitt's Lymphoma. 

The boys were only four years old at the time, and as Max went on to enjoy his pre-K year of preschool,  Leo went on to endure many months of treatment.

Leo and Max playing Nintendo DS games,
while Max visited Leo during one of his in-patient hospital stays
September 2009
I am happy to say that the treatment worked. Leo is now cancer-free! :-)

Leo's mom Joy is one of my best friends, and I have been helping her organize a bake sale to benefit Cookies for Kids' Cancer. Joy feels about Cookies for Kids' Cancer the way I feel about JDRF.

Last week, I baked and froze dozens of cookies, and anyone who knows me well knows that I'm a pretty good baker (if I do say so myself!). 

Many other friends and local bakeries are also donating cookies and cakes and muffins and more to the sale. There will be lots of scrumptious stuff! 

You won't see any price tags on the baked goods. Volunteers working the bake sale tables will accept donations of any amount, and all donations will go directly to Cookies for Kids' Cancer, which supports pediatric cancer research.

GLAD® will match all funds raised through its Glad to Give program. How awesome is that?

If you live in the area, won't you please be a good cookie and help us raise dough for pediatric cancer research?

Thursday, November 18, 2010

Call to Action

A letter with an important message arrived in my InBox. I'll post it below. You can also see it here

We need YOU to call your members of Congress. Take action, please! Please, please, please! 


It's *that* important.

Hallie wrote an excellent blog post about it, too. Read her words here

Thanks!




Dear JDRF Advocate,      

We need you to call your Members of Congress in Washington today.  

The Special Diabetes Program is our nation’s most effective tool to combat diabetes and its complications. The program has received strong bipartisan support in Congress since 1997 and, given its successes, has proven to be worthy of continued federal investment.

HOWEVER, the Special Diabetes Program is set to expire unless Congress renews it this year!   

Please CALL each of your Members of Congress in Washington and tell them to support a MULTI-YEAR RENEWAL of the Special Diabetes Program THIS YEAR! 

You can access your Members’ phone numbers and talking points using the link below.  Also, please take a minute to let us know that you made your calls on our Take Action page.

Visit our Take Action page to make your calls today!

Thank you!

Mike, Melissa, Amanda, and Hasan
JDRF Advocacy Team

Wednesday, November 17, 2010

48



It was 4:15 a.m.

"Mom."

I could hear Jack's whisper.

"Mom, wake up."

I opened my eyes.

"I feel low."

"Okay, well let's test you."

Jack was 48.

A few hours later, as he was getting ready for school, I asked Jack whether the low woke him up.

"No, Max woke me up. Max couldn't sleep, and he wanted me to go into the playroom to play with him."

I keep wondering what would have happened if Max hadn't woken up? 4 a.m. falls between our usual sugar checks.

And why did Max wake up? Max *never* wakes up *that* early. Divine intervention?

Tuesday, November 16, 2010

Our World Diabetes Day Celebration

What did you do on World Diabetes Day?

We celebrated with friends.

You might recognize some of those friends. Kris from My Sugar Bugs, Wendy from Candy Hearts, Tracy from The Superhero and The Princess, Donna from The Sugar Kids Blog and Stephanie from My Life as a Pancreas were there with their kids along with a bunch of non-blogging D mamas and their families.

We had such a good time!

We met at a park and participated in the Big Blue Test.




The Big Blue Test begins with a blood sugar test. The kids all pulled out their meters, and of course, we moms had to photograph them. Wendy brought this great sign. I didn't have the right angle to capture it nicely, and didn't have time to change my angle, as Jack was feeling low and needed his meter. You might want to check Wendy's blog, because if I know Wendy, she'll most certainly post a super shot of this. :-) 



Feeling low, Jack tested quickly, before the other kids. With a BG of 56, he was eating fruit snacks, while the other kids were then testing.


After testing, and boosting those who needed it, the kids paraded around the park for their 15 minutes of activity. The leader of the parade was Kris' Grasshopper, and he kept the kids moving. He had them walking, running, hopping, skipping, jumping, climbing, sliding, wiggling and giggling. Grasshopper was such a good sport!



I think Sugar wins the best-dressed award. Don't you love her WDD shirt and tutu? And let's not forget the blue hair ribbon.




When their 15 minutes were up, the kids tested again.


This was my favorite part of the day. The parents and kids alike began talking numbers and making pre- and post-parade comparisons.

"My blood sugar's 71. What's yours?" I heard Jack ask.

In his everyday life at home, at school, at Cub Scouts, at tennis, at baseball and so on, Jack is the only child with diabetes. He is alone. He is singled out. He is different.

Today, he was one of 10 children with diabetes. He was not the only one testing. He was not the only one with low blood sugar. He was not the only one for whom we were celebrating World Diabetes Day.

It was during this testing-and-talking time that I felt a synergy. There was something greater going on. There was similarity. There was unity. There was support. There was comfort. There was connection. There was community.

It warmed my heart. I am so grateful that Jack knows these other kids and has these experiences with them. I feel so fortunate to be able call these families my friends. I only wish we could see them all more often!

After this amazing moment, it was treat time! Kris made these awesome gluten-free cupcakes. Notice the blue circle for World Diabetes Day? Clever, huh? Delicious, too!


"Happy World Diabetes Day!"


Afterward, the kids ran off to play.




We parents got into a little Type 1 Talk. Our Talk was nothing formal or organized. But when you gather 10 D mamas together, the conversation inevitably turns to T1D.



Recognize any of these D mamas? From left to right: Ann, Steffanie, Stephanie, Me, Tracy, Donna, Katie, Kris, Wendy and Samantha

We all had a blast!

Even Alex enjoyed his first-ever park outing in celebration of World Diabetes Day.

I can not think of a better way to have celebrated World Diabetes Day!

Life is good!

Monday, November 15, 2010

Mother Knows Best

The receptionist looked at me as if I were nuts. I'd just walked into the pediatrician's office, where we were scheduled for an appointment for Madeline to get a flu shot. I had asked the receptionist if they could squeeze in Jack for a rapid strep test.

"Is he sick?" she asked.

"No."

"Does he have a sore throat, a cold or a fever?"she continued.

"No."

See why she looked at me funny?

"I know this sounds crazy," I explained. "But Jack had strep throat last month, and when he did, his voice sounded a little different. Then, last week, Max had an infection on his finger that turned out to be strep, and Dr. F told me to get the kids checked, if they complained of sore throats. Well, Jack hasn't complained. He hasn't been sick at all. He feels well. He has no fever. He's eating normally. He's sleeping normally. He's behaving as he always does, but I just noticed that his voice sounds a little different again. My gut tells me he has strep. I know it sounds crazy. It's just a hunch, but I have to follow up on it. I know we don't have an appointment for him, but can he be seen, please?"

"Let me check," she sighed with a roll of her eyes.

A minute later she returned and told me that one of the docs would be able to examine Jack.

A little while later, a nurse escorted us from the waiting room into an exam room.

"So, Jack, you're not feeling well, buddy?" she asked.

"Nope, I feel fine," Jack said.

"Then, why are you here?" she asked with a confused look.

I gave her the same explanation that I gave the receptionist.

She furrowed her brow and shook her head in a non-verbal expression of "whatever..."

"Okay," she agreed reluctantly. "I'll swab his throat for the doctor."

I could tell that she, too, thought I was crazy.

Then, the doctor came in. She examined Jack.

"His throat looks fine. It's not red at all, and there are no spots," she said, as she continued to check him out. "His ears and nose look good. His glands feel fine. So far, I don't see anything wrong with him. I'd be surprised if he has strep."

She then went to get the results of the rapid strep test.

When she returned, the pediatrician entered the exam room laughing. "You're right!" she exclaimed. "He has strep!"

I knew it!

Diabetes has taught me to trust my intuition.

I know my kids. I'm tuned in. I can usually tell when something's not right, and I know that's in large part due to Jack's diabetes.

Monitoring Jack so closely, I have sharpened my "sixth sense," and I no longer ignore my hunches. There have been countless times when I've gotten a gut feeling that Jack's blood sugar was too low or too high, and a finger poke has proven me right.

I've also learned to be persistent and not give up, even when others, including experts like doctors, think I'm off my rocker.

If I hadn't followed my instincts, Jack probably would have ended up with a much more serious case of strep. He would have felt miserably, and the strep probably would have wreaked havoc with his sugars.

All of you moms out there, follow your instincts! Listen to your gut. Trust your intuition. Believe in yourself.

We mothers know best!

Sunday, November 14, 2010

World Diabetes Day



Today is World Diabetes Day.

Today we celebrate and honor Jack.

Today 40 more children will be diagnosed with type 1 diabetes.

Today we join millions of others around the globe, as we recognize all of these children and adults, who will spend the rest of their lives fighting this disease unless a cure is found.

Most days, we try to make diabetes just one facet of our lives. Today, we will recognize what a big facet that is. As much as we try to instill in Jack that he is a boy with two siblings, with brown hair and brown eyes, who loves Legos and art and science and tennis, who enjoys going to Cub Scout meetings and birthday parties and the movies, and who happens to have diabetes, we also know that, out of necessity, diabetes influences his every day. He is different than his siblings. He does not play with his Legos when his blood sugar is so low he can not function. He can not focus well enough to draw a picture or read about science, when his blood sugar is too high. He must test his blood before eating cake at any party. He must take his D kit with its life-saving insulin and other supplies to every movie, every tennis lesson and every Cub Scout meeting.

Jack is not alone. The World Health Organization (WHO) estimates that more than 220 million people worldwide have diabetes (all types combined). That number is likely to more than double by 2030 without intervention.

So today is World Diabetes Day, a global holiday created in 1991 by the International Diabetes Federation and the WHO in response to the alarming rise in diabetes around the world.

In 2007, the United Nations marked the Day for the first time with the passage of the United Nations World Diabetes Day Resolution in December 2006, which made the existing World Diabetes Day an official United Nations World Health Day.

Diabetes education and prevention is the World Diabetes Day theme for the period 2009-2013. The campaign calls on all those responsible for diabetes care to understand diabetes and take control.

For people with diabetes, this is a message about empowerment through education.

For governments, it is a call to implement effective strategies and policies for the prevention and management of diabetes to safeguard the health of their citizens with and at risk of diabetes. (Hello, school districts?!)

For healthcare professionals, it is a call to improve knowledge, so that evidence-based recommendations are put into practice.

For the general public, it is a call to understand the serious impact of diabetes, be aware of the warning signs, and know how to avoid or delay the onset of type 2 diabetes and its complications. (Type 1 is an autoimmune disorder. Type 2 is a metabolic disorder. Type 1 can not be prevented. For many people, type 2 can be prevented.)

Diabetes is deadly, if not detected, and still often life-threatening when it is detected. Know the warning signs!

The warning signs* of diabetes include:
     • Frequent urination
     • Excessive thirst
     • Increased hunger
     • Weight loss
     • Tiredness
     • Lack of interest and concentration
     • Vomiting and stomach pain (often mistaken as the flu)
     • A tingling sensation or numbness in the hands or feet
     • Blurred vision
     • Frequent infections
     • Slow-healing wounds

*These can be mild or absent in people with type 2 diabetes.

If you show these signs, seek medical attention!

November 14th also marks the birthday of Frederick Banting who, along with Charles Best, was instrumental in the discovery of insulin in 1922, a life-saving treatment for diabetes patients.

From the bottom of our hearts, thank you Frederick Banting and Charles Best! Jack is alive because of you!

As you can see above, the World Diabetes Day logo is the blue circle. Across cultures, the circle symbolizes life and health. The color blue reflects the sky that unites all nations and is the color of the United Nations flag. The blue circle signifies the unity of the global diabetes community in response to the diabetes pandemic.

Today, we unite with others.

Today, we acknowledge this disease that has profoundly affected us, and we hope you will, too.

Here's to World Diabetes Day! Here's to good health, happy days and a bright future!

Sources:
World Health Organization
Interntational Diabetes Federation

??? Wins the Great PJ WDD Giveaway

Drum roll, please...

The winner of D-Tales'
Great PJ World Diabetes Day Giveaway
is

Lisa

Lisa said...
What an AWESOME giveaway!! I purchased several of these pjs
last Christmas and gave them away as gifts :). Count me in please!!

Congratulations Lisa! I'm so excited for you!
Please contact me at diabetestales@gmail.com within 48 hours to claim your prize!

I want to say a big
THANK YOU 
to Komar and PJs for the Cure
for sponsoring this Super Sugar Bolus!

If you didn't win, please consider purchasing a pair of PJs for the Cure!

100% of all sales go directly to JDRF!

  
The following blogs will be rolling out winners from the Great PJ World Diabetes Day Giveaway hourly throughout the day. Be sure to check all blogs and claim your PJs, if you've won. Here's the roll-out schedule:

Beta Buddies (9 a.m. EST)

Candy Hearts (10 a.m. EST)

D-Tales (11 a.m. EST - Lisa is the winner!!!)


I am Your Pancreas (1 p.m. EST)


My Diabetic Child (3 p.m. EST)

My Sugar Bugs (4 p.m. EST)



The Sugar Kids Blog (7 p.m. EST)


The We CARA Lot Blog (9 p.m. EST)


Fellow D bloggers, don't forget to submit your blog post for the Blogger Basal
by next Friday, November 19th to Misty at Life is Like a Box of Chocolates!

You can submit your blog post by emailing Misty at BoxOfChocolatesBlog@hotmail.com.

This is a great way to introduce yourself to the DOC and get to know other bloggers and blog readers.

Thanks for reading D-Tales
and entering the Great PJ World Diabetes Day Giveaway!

Happy World Diabetes Day everyone!

Saturday, November 13, 2010

Boy, Oh, Boy! - Part 2

Jack followed through.  :-)

On Veteran's Day, when we went to the movies and out to lunch, Jack wore one of his JDRF Walk shirts. So did Max, who wants to do everything his big brother does.

That was a big deal for Jack, who's always resisted wearing a Walk shirt on any day, but Walk day.

Here are some pics of the boys.

I apologize for the quality of the pics. I meant to take my camera with me, and I forgot. So I used my cell phone.









Friday, November 12, 2010

D-Tales' Great PJ World Diabetes Day Giveaway!

Welcome to
D-Tales'
Great PJ World Diabetes Day Giveaway!

This contest comes to you courtesy of PJs for a Cure.


PJs for the Cure are specially designed women's and children's pajama sets from Komar, the #1 sleepwear manufacturer in the country.

Komar donates 100% of all sales of these special PJs to the Juvenile Diabetes Research Foundation (JDRF).

Yep, you read that right! 100%  Isn't that great?!

The wife of Komar CEO Charles Komar was diagnosed with type 1 diabetes, and thus, Mr. Komar founded PJs for the Cure in an effort  to raise $1 million for JDRF.
Wouldn't you like to snuggle up in your very own set of PJs for the Cure?

Well, Komar contacted several of us bloggin' D mamas with an opportunity to give away free PJs, and we united for a mega giveaway to celebrate World Diabetes Day! It's a Super Sugar Bolus!

(Just so you know...My fellow D mama bloggers and I are neither getting paid by Komar nor are we receiving free PJs for hosting our giveaway contests. This is simply a fantastic opportunity to spread the word about the great work that Komar is doing to support the research for a cure!)
You can view the entire collection of PJs for the Cure at www.pjsforthecure.org.

Here's how to enter the contest:

Leave a comment on this blog post before Saturday, November 13th at noon EST. Please include your name.

Only one entry is allowed per person.

The winner will be chosen randomly at www.random.org and announced on Sunday, November 14th.

Don't forget that I'm not the only D mama celebrating and holding a contest! Komar generously donated 13 pairs of PJs for this World Diabetes Day Super Sugar Bolus!

So, visit my fellow D mama bloggers listed below and increase your chances of winning! You can enter to win on all 13 blogs!

(But you can only win one pair of PJs. Once you win on one blog, you are disqualified from winning on another blog. We gotta be fair and spread the PJ love!)













Remember, you only have until tomorrow, Saturday, November 13th at noon to enter The Great PJ World Diabetes Day Giveaway on all of these blogs. So, start clicking and commenting!

We D mama bloggers will announce one winner per hour, starting at 9 a.m. and ending at 9 p.m., on World Diabetes Day, Sunday, November 14th.

Good luck!



And, if you don't win, won't you please consider purchasing a pair of PJs for the Cure? It's for a good cause!



Wednesday, November 10, 2010

Boy, Oh, Boy!

Tomorrow is Veteran's Day, and the kids have no school. Hooray! I love holidays!

We have a full day planned. In the morning, we're going to the movies. After seeing Megamind, we're going out to lunch. Then, we'll head over to the pediatrician's office to get Madeline a flu shot (the boys have already received theirs). Later on in the afternoon, the kids will go to their weekly tennis lesson.

We'll be out and about. We'll come into contact with lots of people in various settings.

So...

Jack just came up to me and said, "Mom, tomorrow, I'm going to wear my JDRF Walk t-shirt."

We have been talking a lot lately about the importance of educating others about type 1 diabetes and increasing awareness. I think our talks might be sinking in.

In years past, I've had to beg Jack to wear either his Walk team t-shirt or his or his JDRF t-shirt. He never wanted to draw attention to himself or his disease. So his comment took me back, but absolutely delighted me.

I think my sweet boy is maturing and warming up to a new role: diabetes advocate.

We have never once talked about how wearing a Walk shirt can raise awareness. He made the connection on his own. He made the decision on his own.

I am so proud!

Tuesday, November 9, 2010

DBlog Day: 6 Things I Want People to Know About Diabetes



Today is DBlog Day, and this year's topic is 6 things you want people to know about diabetes.

I’d like to think that, in general, I’m a polite person. My mama taught me well. I mind my manners. 

At times, however, I wish I were more snarky. There are certain questions and comments regarding diabetes that I keep hearing, and because I’m polite, I smile, agree or reply with some sort of a nice, succinct answer.

I wish I could snap back, but I would NEVER do that. That’s just not me.

Besides, people mean well. They really do. And I do NOT mean to offend anyone with this post. I love my friends and family, and I'm grateful to have them in my life. I appreciate their love, care and interest, and I realize that unless you’re living the D life, you can not fully understand it. But, man, people sure say some of the darnedest things!

So, here are six things I hear along with the sarcastic answers I wish I could give.

1) "I don't know how you do it."

Well, I really don't have a choice, do I? I love my son more than anything. I want him around for a long, long, long time. So I must "do it." You would, too, if you were in my shoes.

2) "Wow, you have your hands full."

Better full than empty!

3) "How's Jack?"

(My standard answer: "He's doing as well as a kid with type 1 diabetes can do.")

How do you think he's doing? The kid has flippin' diabetes. It's no joy ride!

How am I supposed to answer that? You really want to know about the roller coaster blood sugar ride he's been on, or how his arms are bruised from injections and his finger tips are now calloused and scarred from being lanced 8 to 12 times each day?

How come people never ask, "How are the kids?" I have three. No one ever asks about Madeline and Max.


4) "What can Jack eat?"

Only lettuce. Iceberg to be exact. The kid can eat anything. Anything! We just have to account for it, and if his blood sugar is too high when it's time for birthday cake, for example, then we'll take a piece home for him to enjoy later, thank you.

5) "Since he has juvenile diabetes, he'll outgrow it, right?" or "Will he ever outgrow diabetes?"

I wish people would stop calling it "juvenile diabetes!" It's so misleading. This is not a childhood disease. This is forever! Jack will not outgrow this! I wish he would! The insulin-producing beta cells in his pancreas have been destroyed, and they’re not coming back...unless perhaps a cure is found. Why do you think we work so hard every year to fundraise for JDRF? You think we like asking people for money? We don’t. It sucks.

6) "Why are his numbers all over the place?"

Because he has terrific type 1 diabetes! Because his pancreas crapped out on us! Because I'm a rotten mother, that's why. Because I don't watch him closely. Because I just let him eat whatever he wants and sometimes, I give him insulin, and sometimes I don't. He's growing people! He's an active boy. He likes to eat a variety of food. Some days, the heat gets to him. Sometimes, those math and spelling tests stress him. Sometimes, he get sick. His body reacts to all sorts of things, like growth hormones, food, weather, stress and germs. That's why!

(End note: I've been brewing this post for quite a while now, and I have a few more things that I wish I could say. I'll post them later this week.)

Monday, November 8, 2010

Getting Naked


My beta buddy Reyna started the latest meme with her Naked Pancreas post. Never one to pass up a good meme, I'm getting naked, too! :)

1. What kind of insulin management mode do you use?

Jack is still on MDI, which means multiple daily injections for those who don't speak D.


2. How often do you inject/change pump sites? 

Every day, Jack gets a shot of fast-acting insulin for breakfast, lunch, dinner and snacks in addition to correction doses of insulin used to lower his blood sugar, if it's too high. 

He also gets one shot of fast-acting insulin daily at 7pm.

That's at least 5 shots per day.


3. What type(s) of insulin do you use? 

Humalog (fast-acting) and Lantus (long-acting)


4. What are your basal settings? 

No pump basal settings for Jack since he's on MDI, but his Lantus dose is 10 units.


5. What are your correction factors? 

1:150


6. What are your meal ratios? 

Breakfast 1:20
Morning Snack 1:20
Lunch 1:20
Afternoon Snack 1:20
Dinner 1:15


7. What do you do for activity and/or PE?

It all depends on his BG. If he's trending low at school before PE or recess, he may boost with juice, fruit snacks or glucose tabs, depending on how low he's been.

Our school nurse is wonderful. On PE days, she takes into account Jack's pre-lunch BG, his lunch carb count, the type of food he's eating (i.e., pizza vs. turkey sandwich), and whether we've seen any recent BG trends, and she'll adjust his insulin dose, if necessary. She usually calls me, before doing so, and I appreciate the way she defers to my judgment, but I totally trust her judgment. She's *that* good. 

Outside of school, Gregg and I take all factors (BG, foods consumed, trends, particular activity, etc.) into account, and give him some quick-acting carbs of choice, if needed. Last Thursday afternoon, before his tennis lesson, Jack was 95, which would ordinarily be a really nice number. But since he plays hard, running around the court like Roger Federer on speed, I knew he'd crash without a little sugar in his system. Two glucose tabs did the trick.


8. How do you manage pizza, macaroni and cheese, or any other "difficult to manage" foods?

We manage by dropping a number of F bombs. We f-ing hate the way foods like pizza and ice cream wreak havoc on Jack's BG. Lately, we have been dividing his insulin dose and giving him two shots, instead of one, separated by about 1 hour. It seems to be much more effective than giving all of his insulin upfront. 

We also test his blood sugar more often than usual, after he enjoys a slice or a scoop, and then we correct if necessary.

Seems easy, eh? Not so. When he eats those foods at night, we usually have to stay awake... or, ehum, Gregg has to stay awake...until at least 1:30 a.m., stabilizing his sugars.

Last night, we ate Chinese food for dinner, and that freaking fried rice and chicken lo mein screwed with his sugars for hours. HOURS!

Have I mentioned we f-ing hate foods like that? We're at the point where we don't eat them often for dinner. It's just not worth it.


9. How do you prefer to manage your logs/data?

I created an Excel spreadsheet that we use. The spreadsheet has space to log BGs, carbs, ketones and insulin doses. It also includes room for notes. Unless, Jack is ill and starts presenting ketones, or unless he's experiencing wonky numbers and needs new ratios, we usually just track his BG readings.  

If anyone wants a copy of the spread sheet, let me know. I'd be happy to share. It holds a week's worth of data.

Friday, November 5, 2010

Normal



Our puppy Alex was neutered this morning, and as to be expected, he's lethargic tonight.

The kids, who adore Alex beyond measure, have been concerned. They're accustomed to seeing a playful, energetic puppy, who steals socks, fetches tennis balls and chases our cats.

As I was telling the kids not to worry, Jack interrupted me. "Mom, you know why we shouldn't worry?" he asked. "Because Alex just had surgery. He'll be normal again. Just like I was diagnosed with diabetes, and now I'm normal again."

I was at once proud and sad. It is comments like that that reassure me he's doing well emotionally. He sees himself as "normal." This crazy D life with its highs and lows, pokes and shots, carb counts and D kits, IS "normal" for him. He's accepted his disease. He's just Jack, a seven-year-old boy, who has a dog named Alex, a brother named Max, a sister named Madeline, brown eyes, a love of Legos and all things Star Wars, and a mean backhand when playing tennis.

And while I felt proud of and happy about his perspective, I also felt sad, because this crazy D life IS his normal. It shouldn't be. He shouldn't be able to make analogies like that. He shouldn't know from highs and lows, shots and pokes, carb counts and D kits...but he does.

In fact, over the past few hours, his blood sugars have been anything but "normal" or stable. This afternoon, we took part in a school fundraiser at a self-serve yogurt shop. Jack ate roughly three-quarters of a cup of yogurt topped with a lone maraschino cherry and rainbow sprinkles. This tasty treat sent him hovering in the upper 200s with numbers like 286 and 297 that wouldn't budge. Then, he crashed and couldn't rise up and out of the 60s. After candy and juice, he's now in bed and sleeping at 119. If only I could cross my fingers and type here... I'm praying he hovers there for a while and doesn't bounce back with a second round of highs! But you see what I mean? These numbers are anything but "normal," unless you're a kid with diabetes.

P.S. Here are couple of pics of Madeline with "Mr. Lamp Shade."




Madeline's 'do is looking a bit messy in these photos, but Madeline is very particular about her hair. She has to have it just so, and she loves accessories. So, she's hoping we win this week's Sugar Bolus. Tracy from The Superhero and The Princess is giving away some cute, girly-girl hair accessories, and Madeline wants them, especially the flower with the rhinestone center! If you have no idea what I'm talking about, go check out this week's contest!

P.P.S. I apologize to all whose blogs I generally read. I have not left any comments lately, because my computer has been crashing when I comment. Does anyone else have that problem with Blogger? It's driving me nuts! The few comments I've left here and there have been done with my cell phone or Gregg's computer. I hope to be able to comment with ease soon!  

Thursday, November 4, 2010

Juice, Juice and More Juice

A friend recently looked in our refrigerator and exclaimed with surprise, "Look at all that juice you have in there!"

I had to laugh. I mean, come on, don't most parents of children with diabetes have a lot of juice in their fridge?

Open my fridge and this is what you'll see today.


Open that drawer and you'll find more: pouches, little boxes, big boxes, different brands, different flavors, different carb counts. A D mama needs variety!


The little Juicy Juice boxes are what my kids consume the most, especially Jack. With 4.23 ounces and 15g carbs, they're the perfect "pick-me-up" to treat a low.

If you, too, are a fan of Juicy Juice, you should check out this week's Sugar Bolus, because Lora of My Diabetic Child is giving away Juicy Juice! How awesome is that?!

If you glance in our pantry, you'll see more juice. If nothing else, this house is stocked with D supplies, and juice is considered a D supply here. 




Did you notice these?



Yes, I know it's baby juice, and my youngest "baby" is now five years old, and my kiddo with D is now seven. But, these juice bottles are awesome. The key word there is "bottles." This juice comes in 4-ounce, 14g-carb bottles.




This is the juice that sits in Jack's D kit, in my purse and in my car, waiting for a low to strike.

The idea to use these Gerber bottles came from my friend Michelle, who is a more seasoned D mama than I. It was one of the best suggestions I've ever received.

Juice boxes break down. They don't necessarily stand the test of time. Ever have a juice box leak into your purse or D kit? Or your glove compartment? I have. What a wet, sticky mess!

The Gerber juice bottles don't deteriorate. They don't break. They don't squish. They don't leak. They can withstand rumbling and tumbling. Toss one in your bag or your car and forget about it, until you need it. It's practically guaranteed not to ruin anything.

They do feature the Gerber baby face, and Jack would be mortified if his friends saw him drinking baby juice. So I just rip that sweetie pie's picture right off of the bottle. Problem solved. (The label is paper, like a soup can label, and can be easily removed. I just eliminate the baby and leave the rest of the label.)

They come organic or not in a few different flavors.

There you have it: one of the best tips I've ever received...from Michelle to me, and now from me to you! :-)